AMIA 2017 Policy Invitational

For the last several years, new and novel types of data have begun to sharpen (and in some cases) redefine the picture of a patient’s health.

• The adoption of EHRs and other health IT in care delivery has dramatically increased the amount of health data and information available to describe patients’ health; 
• The addition of rich contextual data about patients – and by patients – including environmental, geographic, behavioral, and genomics are adding digital definition to patients’ stories;
• Development and expansion of mobile health applications are adding various kinds of wellness data to the already complex domain of clinical data, and offering new methods for patient empowerment and participation in care and research; and
• Advances in basic and clinical research, with high throughput computing and processing, have enabled a single patient’s picture of health to inform the pictures of many patients’ health.

These trends are converging to deliver a more refined picture of health, where personalized care can deliver treatments tailored to the individual, where a single patient can inform and improve the health of populations, and where the "N-of-Many" can be leveraged to better understand the "N-of-1." The focus for API17 will be on health informatics policies needed to support this emerging paradigm.

Meeting Process & Outputs

The two-day meeting will begin with a clear articulation of the delta between the current and idealized future state of patient- and family-centered care, research, wellness, and community. Barriers to idealized scenarios describing how patients want to maintain health & wellness, interact with care delivery, participate in research, and contribute to healthy communities will be identified before the meeting. Keynotes and panels will provide context along these threads, followed by participant Q&A and breakout sessions where attendees engage in a discussion of relevant policies and policy gaps. The final product will be consensus action-items and policy recommendations that will empower patients and families in this new paradigm. These recommendations will be presented to Congress and the public during a November event on Capitol Hill.

7:30 a.m.

Breakfast

8:00 - 8:30 a.m.

Welcome, Meeting Context, and Expected outcomes

8:30 a.m. – 9:10 a.m.

Morning Keynote Address: Liz Salmi, Brain Cancer Survivor, Blogger (TheLizArmy.com), OpenNotes

9:15 – 10:00 a.m.

Panel Discussion 1 - "From Black & White to Technicolor -
How New & Novel Data Are Adding Definition to Our Picture of Health"

10:15 a.m. – 11:15 a.m.

Breakout Session 1: Scenarios Review & Critical Issues Identification

11:30 a.m. – 12:15 p.m.

Panel Discussion 2 - "Moving Pictures – Promising Initiatives & Emerging Models for Person-at-the-center Care & Research"

12:30 p.m. -1:30 p.m.

Networking Lunch

1:45 p.m. - 2:30 p.m.

Afternoon Keynote Address: Donald Rucker, M.D., National Coordinator, Office of the National Coordinator for Health IT

2:35 p.m. – 3:35 p.m.

Panel Discussion 3 - "Holograms of Our Health – Next-Generation Enablers of Augmented Decision-making & Intelligent Research"

3:45 p.m. – 4:45 p.m.

Breakout Session 2: Critical Issues Deep Dive & Scenario Recommendations

5:00 p.m.

Closing Remarks and Preview Day 2 Activities
 

7:30 a.m.
Breakfast

8:00 a.m. – 8:15 a.m.

Welcome, Review, and Preview Day 2
 

8:15 a.m. – 9:00 a.m.

Large Group Discussion 1: Present Cross-Cutting Issues and Brainstorm Policy Recommendations on Key Cross-Cutting Issues

9:15 a.m. – 10:30 a.m.

Breakout Session 3: Develop Policy Recommendations on Key Cross-Cutting Issues

10:30 a.m. – 10:45 a.m.

Break

10:45 a.m. – 11:45 a.m.

Large Group Discussion 2: Report-Out of Small Group Session #3 Recommendations

12:00 p.m. – 12:45 p.m.

Networking Lunch

1:00 p.m. - 1:45 p.m.

Reaction Panel: Ethical Implications of API17 Recommendations & Other Considerations

1:45 p.m. - 2:00 p.m.
Closing Remarks